21 Websites:Organisations:Summaries:Related categories:Related keywords:Related locations:
spierziekten.nlSpierziekten NederlandThe Spierziekten Nederland website provides information, support, and a platform for individuals with muscle diseases and their families.Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 member 10154 event 45199
stofwisselingsziekten.nlPatiëntenvereniging voor StofwisselingsziektenThe Patient Association for Metabolic Diseases (VKS) provides support, information, and advocacy for families affected by metabolic diseases.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 magazine 2182 family 6462 event 45199
bloedziekten.nlStichting Zeldzame BloedziektenThe website of Stichting Zeldzame Bloedziekten provides information, resources, and support for patients and families affected by rare blood diseases.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 rare disease 12 reference 332 patient 4082 association 8562 event 45199
duchenne.nlDuchenne Parent ProjectThe Duchenne Parent Project is an organization dedicated to research, awareness, and support for young boys with Duchenne muscular dystrophy.Conditions → Neurological Conditions 20 Social Services → Welfare 1001 duchenne 21 medication 1164 research 8967 event 45199
alspatientenvereniging.nlALS Patient AssociationThe website of the ALS Patient Association provides support, information, and advocacy for individuals with ALS, PLS, and PSMA, their families, and fellow patients.Social Organization → Patient Organizations 259 Neurological Disorders → ALS 12 als 45 peer support 68 buddy 133 event 45199
angelmansyndroom.nlVereniging Angelman Syndroom NederlandThe website of the Vereniging Angelman Syndroom Nederland (vASN) provides information and support related to the Angelman syndrome.Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 research 8967 membership 10442 event 45199 Gelderland → Apeldoorn 6996
huntingtonoostachterhoek.nlStichting Huntington Oost AchterhoekThe Stichting Huntington Oost Achterhoek is a foundation dedicated to advocating for individuals affected by Huntington's disease and their families.Diseases → Neurological Diseases 21 Disease & Treatment → Neurological Disorders 100 foundation 6678 research 8967 event 45199
ehlers-danlos.nlEhlers-Danlos Patients Association (VED)The Ehlers-Danlos Patients Association (VED) is a patient organization established to support and inform individuals with Ehlers-Danlos Syndrome (EDS) and Hybeschronisch Dysplasie Syndroom (HSD).Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 ed 11 diagnosis 1490 association 8562 treatment 21203 event 45199 Rotterdam → Center 382
stomavereniging.nlStoma AssociationThe Stoma Association provides support, information, and a platform for individuals with a stoma, their families, and caregivers. The aim is to promote good stoma care and increase awareness surrounding living with a stoma.Social Organization → Patient Organizations 259 stoma 20 research 8967 membership 10442 event 45199 Eindhoven → Woensel-North 176
nahforumalmere.nlNAH Forum AlmereNAH Forum Almere is an organization dedicated to providing support and information to individuals with Non-Congenital Brain Injury (NAH) and their caregivers.Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 nah 77 caregiver 1167 event 45199
sepsisnet.nlSepsisNederlandSepsisNet is an organization dedicated to increasing knowledge about sepsis and improving care for sepsis patients.Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 knowledge 3528 patient 4082 care 12338 event 45199
hartenlongtransplantatie.nlHeart & Lung Transplant Patient AssociationThe website of the Heart & Lung Transplant Patient Association provides information, support, and opportunities for contact for patients, families, and others involved in heart and lung transplantation.Social Organization → Patient Organizations 259 transplantation 20 donation 5110 membership 10442 event 45199
caleidoscoop.nlCaleidoscoopCaleidoscoop is a national patient association dedicated to supporting individuals with dissociative disorders and their families, providing them with information, peer support, and advocacy.Social Organization → Patient Organizations 259 Mental & Emotional Well-Being → Mental Disorders 15 peers 89 mission 1000 association 8562 event 45199
nee-eten.nlNee-Eten!The website of Nee-Eten! is a platform for parents of children with chronic food refusal, providing information, support and contact opportunities.Social Organization → Patient Organizations 259 Medical Care & Services → Pediatric & Child Health 2121 parent 4318 newsletter 6504 event 45199
laposa.nlLaposaThe website Laposa is a national patient and elderly association dedicated to individuals with craniofacial conditions, providing information, support, and a platform for contact.Social Organization → Patient Organizations 259 Social Services → Seniors 822 condition 425 patient 4082 research 8967 news 15293 event 45199
galactosemievereniging.nlGalactosemie Vereniging NederlandThe Galactosemie Vereniging Nederland (GVN) is a connecting platform that provides insight, support, and innovation in the fight against galactosemia.Social Organization → Patient Organizations 259 Essential → Health 91589 donation 5110 membership 10442 event 45199
wijnvlek-sturgeweber.nlNv WSWsThe website of the Dutch Association for people with a Port-Wine Stain or Sturge-Weber syndrome provides information, support and a platform for members and their families.Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 association 8562 member 10154 event 45199
actievoorduchenne.nlactievoorduchenne.nlThe website, Actie voor Duchenne, is a platform for organizing and supporting campaigns to aid children and men with Duchenne muscular dystrophy.Social Organization → Patient Organizations 259 Disease & Treatment → Disease Management 35 cyclist 135 electronics 971 fund 1063 campaign 3428 research 8967 event 45199
returntobase.nlStichting Return to BaseStichting Return to Base is a foundation that organizes sporting activities for wounded, injured, and illness-stricken Defense personnel.Disability Services → Day Programs 305 peers 89 participant 1934 sport 4228 foundation 6678 event 45199
samentrots.nlSamen TrOtSSamen TrOtS is an organization dedicated to individuals with TOS (Tinnitus, Hearing Loss, and Electrical Loss) and their families.Social Organization → Patient Organizations 259 Primary Education → Learning Resources 129 tos 17 kids 84 camp 2466 region 5412 event 45199 Overijssel → Kampen 2161
bechterew-nijmegen.nlBechterew patient association Nijmegen and regionThe website of the Bechterew Patient Association Nijmegen and region provides information and support to patients and their families.Social Organization → Patient Organizations 259 Chronic Diseases → Rheumatism 29 association 8562 member 10154 event 45199 Vleuten - De Meern → Vleuten 574